Muscular Dystrophy Website Resources

·         This website is a PDF document from the Paralysis Resource Center about Muscular Dystrophy.  It includes general information about the disorder, treatments and great resources that include websites, chat rooms, books and videos for parents, children, and educators.  This document is very beneficial when learning about all aspects of MD because it has a vast array of resources available.

o   http://www.christopherreeve.org/atf/cf/%7B3d83418f-b967-4c18-8ada-adc2e5355071%7D/Muscular%20Dystrophy%208-08.PDF

·         This website has a factsheet that includes Causes, symptoms and complications, diagnosing, treating and preventing the disorder of Muscular Dystrophy.  It has very detailed information about the disorder and is great for someone who is not familiar with all of the facts about MD. 

o   http://chealth.canoe.ca/condition_info_details.asp?disease_id=91

·         This is a page off of the Children’s Hospital Boston webpage that is geared towards parents whose child has just been diagnosed with Muscular dystrophy.  It includes the explanation of Muscular Dystrophy, the causes, how it is treated, and a long-term outlook for a child with muscular dystrophy.  This website can be very useful for any type of people trying to learn about Muscular Dystrophy, but is especially important for parents to check out.  

o   http://www.childrenshospital.org/az/Site1087/mainpageS1087P0.html

·         This particular webpage is important because it portrays five things that teachers should know about children with muscular dystrophy.  It is a great resource for teachers as well as parents because it helps prepare the school for the student with muscular dystrophy.  The site also includes printouts to share with teachers, such as A Teacher’s Guide to Duchenne Muscular Dystrophy, Information for Educators, and an Education Factsheet from the Muscular Dystrophy campaign.

o   http://specialchildren.about.com/od/musculardystrophy/a/MDschool.htm

·         This article is entitled “Muscular Dystrophy-What Teachers Should Know” that has everything from what the disease is, what you, as a teacher, need to know, and tips on how to work effectively with students and their families.  This webpage emphasizes that teachers need to show expert teaching, a great deal of understanding, support and empathy when working with students that are affected by muscular dystrophy.

http://www.brighthub.com/education/special/articles/25193.aspx